The Reluctant Carer

I care for my husband who has Huntington's Disease. I'm new to this caring or 'uncaring' and I'm struggling. In being honest about this, maybe other carers will feel less guilty and less alone.

Sunday, March 18, 2007

Coming Home

This morning, I lay in bed feeling sick, fixed to the sheet, at the thought of Roo coming home. Now I know how lucky I am to have had a two week break including a trip to the US; after all, it's more than most carer's get. However, it's also given me a glimpse of another way of living. I have discovered new things about myself, and I don't want to forget them, or bury them. There's been uninterrupted time spent with the children. They've had their own thoughts on Roo's homecoming:

Arsey (16) 'Can we invent an illness that's worse than HD, so that he stays at Moos?' (ho, hum)

Sweet-Pea (4) It's hard for you to look after everybody, when dad's home. You stop looking after yourself when he's back. (B****y Hell that child is scarily perceptive)

Honey (7). He has spent the last two days subsumed within a large Guinness hat. Anything he says is muffled, but I think it included '.......cool......snot......belch.'

Really, what more can I add? Think I'll get one.

1 Comments:

  • At 7:59 AM, Anonymous Anonymous said…

    I feel like this every time my husband comes back from the home he goes for respite. It doesn't seem to get easier.

     

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