The Reluctant Carer

I care for my husband who has Huntington's Disease. I'm new to this caring or 'uncaring' and I'm struggling. In being honest about this, maybe other carers will feel less guilty and less alone.

Tuesday, February 27, 2007

Poorly

I'm ill. I've had two different diagnoses; both ending in 'itis', and I can't spell either. However, they both mean a sore throat, paroxysms of coughing, aching, intermittent temperature, exhaustion and feeling sorry for myself. The prescription is rest and lots of green vegetables. Ha, I hear you snort, 'fat chance'. The adage, 'who cares for the carer?' springs to mind. After all, there is Sweet-Pea, Honey, Arsey the teenager and Roo, all expecting me to perform like a F1 car. In fairness, Arsey has been less arsey, and even took over cooking yesterday evening, when he saw that there was a real danger that I might end up in the bolognese, and thus spoil his supper. Sweet-Pea and Honey read stories to me last night, and spilt water in the bed, as they fought over who could get me a drink the quickest.
But Roo has been thrown into a panic. He genuinely can't cope with any changes or signs of weakness in me. It threatens his sense of stability, and he's developed a 'cold'. This involves, much sniffing and detailed reports on bogeys. It impresses Honey, who looks on with fascination, muttering 'cool'. Sweet-Pea, keeps patting Roo, and tells him 'we still love you' (scarily perceptive at four years old).
And me? Well I'm off to my imaginary bed. I just can't compete with imaginary bogeys.

2 Comments:

  • At 8:06 PM, Anonymous Trish said…

    For God's Sake Woman. You don't have time to be ill. Snap out of it!

    Actually, your kids sound like fantasic little soldiers (even the teenager one who would prefer to be classed as SAS). As for Roo not being the centre of atention.... My hubby wasn't the first guy I shagged (oops I meant lived with) and from a lover perspective he wasn't the last. HD or no HD, if it's any consolation Roo is simply being a man at this stage. They don't do illmess well in themelves or others.

    I always stick to the green veg being interpretted as more cucumber in my Pimms and Lemonade. Well it works for me! Hic

    Tx

     
  • At 10:04 AM, Blogger Gill said…

    Dear Dee

    Who cares for the carer? Friends, that's who!! Let your friends do the caring when you're not well and when you are well too. That's what friends are for -as the old song goes. Probably before your time, Dee!!
    Hope you're feeling a little better now. You could always say that there will be no dinner tonight as you are so poorly. Perhaps 'Arsey' will let appetite prevail over attitude and do the dinner again. Who knows, you could even get 'post viral fatigue'- imaginary of course - (instead of the fatigue you already cope with every day) and Arsey would have to cook every day!!
    Keep your chin up. You have friends who love you very much. When all else fails eat chocolate! You don't have to cook that!!

    Daisy

     

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