In Neutral?
Recently, I've noticed that it's becomingly increasingly difficult to engage Roo in conversation. He's always been a quiet observer, but in his moments of quiet, he no longer seems to be observing, just absent. This absence concerns me, it seems to mark a new stage in the illness. Where does he go in these moments of absence? Is he sad, lonely, reflecting on life, dwelling on the next obsession? Or has his brain simply gone into neutral, as a friend suggested? I try to motivate him, when he's like this. I point out something on the radio, or start chatting about the kids. But he always goes back to that inner place. I hope there's some sort of peace there, because out here, it's disquieting and rather unnerving. Another loss, another adjustment.

8 Comments:
At 10:29 PM,
anonimouse said…
I've noticed this absence in my piglet for sometime. It comes and goes. Sometimes he covers it up by 'watching the TV' or 'listening to the radio'...but I'm sure that a lot of the time he is just absent....somtimes I think I prefer him that way....
At 10:52 PM,
Trish said…
I usually have a funny spin on my comments as you know hun but my hubs has been doing that for a long while and I know what you feel. The serious bit though is I have come to finally acknowledge as a Gemini I am a natural comunicator so hold the value of conversation in great store. However, maybe hubs is just tired and his lack of interaction is more a problem to me than to him.
Tomorrow (26th Feb) we have a Speech and Language Therapist calling at our home with various 'toys' to help hubs communicate when his mouth and brain no longer coordinate at all. As heartbreaking as this might sound maybe we are better off not knowing what they are thinking?
Trish x
At 11:15 PM,
Barb said…
Dee, i know what you are talking about, i get like that, even though im in very early stages, but with me it also comes and goes, depending how im doing, i have better days than others. To answer your question, is he reflecting? or is he absent? I can tell you from me, its a little of both. I will be aware of whats going on around me, but not feeling like i want to interact with my surroundings very much that day, because, im feeling a little confused and cant keep up with interaction. Also, many times im aware, and im thinking, but i cant seem to get beyond thinking, cant get my thoughts to initiate into conversation, and many times conversations are too long for me to focus on, but i am very aware, just thinking, and sometimes, im not quite as aware, but actually wanting time to myself, so i withdraw and get reflective. Its because sometimes its tiring having to keep up with conversation, even focusing on a tv show can be hard. Even conversation is a Job, that Has to be done, you know? You know what can be nice at moments like that? A little non verbal communication, just a quiet snugle on the couch, or a quick pat on the hand as you walk by, just i dont know if that helps, but i thought maybe i could explain from first hand experience a bit...smile...have a good day
At 11:18 PM,
Barb said…
PS Dee, sorry i forgot to add. You said its another loss, yes it is, does he notice? yes, he does too. And you know dee, if this gets bad, sometimes a med adjustment can help too , take care
At 6:58 AM,
anonimouse said…
dear Barb, thanks so much for sharing that with us.
Take care
At 10:30 AM,
Giggle said…
Thank you too for that Barb; Its poignant to hear it from someone going through it, and helps to see from the other point of view too. I know my hubs is just 'so tired' now, and wonder if that is the start of having to concentrate that much harder. I have to get through the mindset of changing my brain and my expectations to allow for the changes in his.
At 4:18 AM,
Dee said…
Thank-you for all your comments. It helps tremendously to have your perspective on things. Thank-you Barb, because your insight was so personal, and gave me a sense of peace and comfort about these lapses.
x
At 2:54 PM,
Dante said…
Mmm, can I say thanks Barb, too. My partner has HD and for years I have felt as if at times she is on the end of a line that stretches further into the distance as time goes on and part of my job is to try and 'reel her in' to stop her getting too far away. Your explanation for her apparent absences is immensely helpful. I had lately resorted to just sitting next to her sometimes with my hand on hers as she watches TV, so I'm glad to hear maybe that is the right thing to do at times. All good wishes. And to you Dee: get well soon x
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